Tuesday, January 29, 2013


Lincoln had tubes on 1/14 unsure if I mentioned that previously. He's doing great!!! He's been a little more verbal (new sounds)and a lot more calm surprisingly.

I'm working a lot lately.  Lincoln is getting sicker in one way, less in others. It's hard!  Lincoln passed out on Thursday 1/24 at school.  He had a great breakfast that day and nothing new.  I took him in to the doctor where the EKG showed something suspicious at first. In the end it was  ok after it was reviewed by a pediatric cardiologist . Talk about scaring me half to death! We now are headed to a neurologist for another EEG and MRI. I'm nervous, but on the other hand I know I've been his advocate to the best of my ability.

My fears are something may be greatly more wrong than just autism.  Last night Lincoln began to vomit, but it has since left. He refused to eat all day, so I guess he was sick all day. I plan to discuss this Thur with the neurologist. Hoping it was a fluke, but no one else has been sick thus far.   I find myself saying "fluke" a lot lately. I don't know if it's me in denial , scared, or nervous, but I just hate the possibilities of what could be happening. SO that being said, we're taking it a day at a time. There is 0 use in freaking out over it currently, when I've done everything I can. Also there is nothing I can do at this point but pray.  Look for an update next week on Link and what the EEG shows. We get the MRI on Feb 25th.

Due to all of the current happenings, we've yet to start anymore bio medical treatment . Maybe when all of this get's sorted out we can continue with that.

Thursday, January 17, 2013

Photo Thursday

Wow. It's been a week since I updated. In my defense  it's been WILD around here. Lincoln had tubes put in Monday. That night he mimicked 2 words! I was excited, but it was short lived and he hasn't done anything else since. He has been crazy acting and I know his ears have been bothering him.  On top of all of this school was canceled all week due to snow.  On a very positive note, my husband is off work tomorrow!  YAY!!! My sanity may very well return :)  I'm anxiously awaiting some vitamins for Lincoln from Amazon. Can't wait to start down that path in our bio medical treatment.  I'm cautiously optimistic.  Who know's what tomorrow will bring, may be another 3 inches of snow :) That is a big deal here.

Thursday, January 10, 2013

Photo and Update Thursday :)

Lincoln will be getting tubes Monday.
He has been relatively calm the last few days, it's weird. Still doing well.  Hoping the tubes really helps him feel better. He was great at the doctor this week, he is a trooper. I'm anxious to get the ears fixed. I'm cautiously optimistic that his speech may improve a little. It's a long shot, so I'm not trying to get my hopes up.

Lynleigh- I talk so much about Lincoln, so I figure on Thursday's I will update you on the other two as well .
    Lynleigh is doing well with her speech. She has therapy 4 times a month. She is the shy twin out of the two.  She is such a sweetie and loves pretend play.  She does well with speech, so I aticipate her being caught up by 2 1/2.  She is 8 months behind currently in language.
    Most everyone thinks I'm crazy for doing the speech with her. After the Lincoln situation, I can't take any chances. She and Link have a lot of similarities.

Lacey- Oh where to begin with her. She is quite the pistol.  This week she asked me "What are you doing? "  while I was looking in the mirror doing my makeup. I just replied " My makeup" and she said "Mirror yadadfdsfdsf (un recognizable words lol) She is a chatty Cathy.  She is persistent in getting onto the other kids. If they aren't doing right, I will hear "No, No!"  Most all of the time it's correct too. So she is helping me out :)

Tuesday, January 8, 2013

Bump in the Road

Lincoln will be getting tubes in the coming weeks. He's had an ear infection that has lived through azithromycin, augmentin, cleocin, and 3 rocephin shots.  The infection is as stubborn as it's host ;)  I probably shouldn't have watched the video of tubes being inserted on you tube. It has made me nervous.  Keep us in your thoughts as we prepare for that journey!

I'm struggling with when it's right to share our story with our friends and family.  I'm not wanting pity, I'm not wanting an excuse for Lincoln's behavior.  Quite frankly it isn't any of their business.  If my child is different, what is it to them?  My issue I have now is this :  If I'm 1 in 88 , odds are there are people on my Facebook page or daily life who may very well be struggling as I am.  I want to help them in whatever way I can.  Whether it be someone to relate to, someone to bounce off ideas with, someone to cry to, anything.  I've been fortunate to have a friend who is dealing with the same thing as us.   The type of person I am I want to help. I want people to take from our situation or my words and feel that they too can make it through this.  I want all the moms of the 1 in 88 to be able to look at the situation we have been given and fight with me.  We shouldn't accept that this is it.  Even if this is it, I want to fight to prevent this from occurring SO OFTEN! We have got to figure out what is causing so many children to be effected! If I don't share our story and I hide behind the autism, what good does that do for awareness?  What good does that do for Lincoln? I'm not ashamed of him.  I'm just fearful of being judged and being looked at differently. I want Lincoln to be seen as Lincoln , not Tracey's boy who has autism.  I worry about the label and people not looking past it and missing out on  what an amazing boy he is.

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